Being Patient

Amy and Dad

That’s a picture of my Dad and I at my wedding last year. I think it was the last time he looked his healthiest. Since that time we, as a family decided to place him in a care facility. His care became too much for my Mom to handle on her own. It was a very difficult decision and it has been an adjustment for all of us. But that is a story for another time.

Over the holidays I was asked by the Being Patient website if I would share my story of being an Alzheimer’s caregiver. They found me via Instagram. I was overjoyed, nervous but excited. It felt kind of odd to be referred to as a caregiver because I didn’t see myself as such. Even though I wasn’t his primary care giver I did care for him in small ways to help my Mom out. So I wrote up a little article sharing my story. You can read it here under the Voices section.

https://www.beingpatient.com/voice/amy-jolley/

Being Patient is a website providing information for those who have been impacted by Alzheimer’s Disease. They provide helpful articles about brain health, genetics, the importance of living a healthy lifestyle, or anyone searching for answers or who has been affected by the disease. The two best parts I believe, is the Voices section and the Podcast. The Voices section one can read all about family members whom are caregivers to their loved ones. The podcast offers a glimpse into the life of someone actually living with Alzheimer’s and you can listen to his journey. It was eye opening for me and I’ve gained another perspective on what it’s like to live with the disease and to explain the experience.

This disease can be frightening and saddening for the one affected and those that love them, it’s also reassuring to know that you are not alone. By reading others stories helps to solidify the aspect that we are all together and that we are not alone. I hope that you head on over to the website and read my story and the others who have shared theirs.

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